You need to demonstrate burden of disease but can't afford enterprise platforms
Your community members have limitations, physical challenges or are geographically dispersed
You want to separate patient and caregiver perspectives to get honest feedback from both
You need sophisticated research methodology—forums, surveys, interviews—not just simple surveys
You’re partnering with smaller biotechs who need patient data but can't access expensive tools
Traditional research methods don't accommodate your community's unique needs
Click any tile to explore core workflows.
Capture patient and caregiver experiences that meet "voice of the patient" submission requirements. Document burden of disease across the full disease journey from symptom onset through end-of-life with the methodological rigor regulatory authorities expect.
Create virtual spaces for patients and caregivers where they can share experiences honestly without concern about burdening loved ones. Flexible timing accommodates cognitive limitations, bad days and varying energy levels. Participants contribute when they're ready, not on rigid schedules.
Deploy standardized, clinically validated assessment tools through online surveys. Capture quantifiable data on disease burden, functional limitations and quality of life impacts that complement qualitative insights.
Sequence research touchpoints strategically—discussion forums open dialogue; surveys provide directional data; and one-on-one interviews reveal crucial nuances that other methods miss. This multi-modal approach generates richer patient experience data than any single research method.
Support participants with varying cognitive abilities, physical limitations and technology literacy. Platform accessibility features combined with hands-on support enable participation from caregivers in their 80's, patients with progressive cognitive decline and families dealing with terminal diagnoses.
Our model makes sophisticated patient research methodology available to rare disease foundations and patient advocacy groups working with limited budgets. The same capabilities large pharma uses—but at price points that work for your organization.
Support the research approaches your community needs—asynchronous forums for ongoing dialogue, surveys for validated data collection, coordinated interviews for deep insights. Each modality serves distinct purposes and reveals different facets of patient experience.
We work directly with your biotech partners to design research programs, coordinate with your patient community and generate data that supports regulatory submissions. Your advocacy group maintains relationships with community members while we provide technical infrastructure and research methodology support.
Some patient advocacy organizations use the platform directly for community building, educational programs and member engagement. We provide full platform access, training and ongoing support so your team can manage programs independently.
For complex patient experience research or FDA submission support, we offer collaborative partnerships where our team works alongside your advocacy group and biotech partners. We provide research design expertise, participant coordination, technical support and data analysis while you maintain community relationships and strategic direction.
Nobody wants to gamble on a complicated new system. That’s why we’ve made getting started with ExtendMed simple and supportive—from first conversation to long-term success.
Tell us about your patient community—the disease you're focused on, current challenges in capturing patient voice, specific research objectives or submission needs. We'll discuss how Health Expert Connect™ can support your advocacy mission.
We'll demonstrate exactly how the platform supports patient experience research—asynchronous forums, validated assessments, interview coordination, accessibility features. You'll see how it accommodates diverse patient needs and generates FDA-ready data.
Our team guides you through participant recruitment, technology training and research execution. We provide hands-on support for community members with varying technology literacy and work alongside your team throughout the engagement.
